CHARLESTON -- "Racing for ROHHAD," a benefit race for Charleston preschooler Reagann Duenne will begin at 5 p.m. Aug. 11 at Dyno Dom's Sikeston Drag Strip.
Even though her daughter has not been diagnosed with the rare syndrome, ROHHAD, B.J. Duenne said she and her family are on a mission to increase awareness in the community as well as with pediatricians throughout the region.
"We want to spread the word about a rare disease my daughter is at-risk for being diagnosed with," Duenne said.
For the complete article and more stories from the Standard Democrat, click here to log on to the electronic edition.